About us (Dravet Syndrome Japan)

Dravet Syndrome Japan (DSJ) is an organization consisting of those with family members who have been diagnosed with Dravet Syndrome or suspected Dravet Syndrome. We are trying to relieve concerns and solve problems in the daily lives of these families by sharing information about new medications, holding family gatherings, and working on petitions for medication to be approved, among many other things to offer support for our members.